Hiya
Today Im just doing a little diary of where Im at right now
I seem to be finally over the wedding last week , one day took me four days to recover from but was well worth it.
It did get me thinking though about how well people just dont know what us spoonies go through in order to have one day of joining in . I dont mean this as a moan I am so happy that I was part of it and think it was worth every bit of the pain and other symptoms that I had in the days after .
Most "well "people just enjoyed the day and then go on as normal the next day , perhaps with a little hangover , while I was pretty much bed ridden for the next 2 days , It taking four days to get over it.
Im not complaining or saying that people should stop and think , I know I never thought that some people may of been bed ridden just to be part of my big day , Its just a little thought I had about how clueless we are to each others lives.
The last couple of week or so I have had to keep hourly logs of my activity ,rest , sleep and pain for clinic I attend for people with Chronic Fatigue , Ive kept up with it for the most part and it was reviewed today showing me that I get far to little sleep but I was actually impressed at how much I do manage to do in a day.
Activities can be anything you yourself count as activity from washing , walking to being at your computer or watching tv depending on the person . We worked out that I do roughly 3 hours activities a day and so I have been sent a goal of doing three and a half hours daily and been given a new log to do that is every 15 mins to keep track of it.
This on its own sounds fine but I told the woman that I will do what I can aim for three and a half hours and keep a track of it , to that she replied " oh no your to do three and a half hours no matter how you feel or what your symptoms is telling you, thats the point , push yourself "
Now , firstly I heavily believe you should always listen to your body the improvement I have had in the last 6 months or so is buy doing exactly that . I do however understand that I must try to keep my body moving to help it but do it in a safe way not pushing past my personal base line.
When I got home I read that last week a trail was published that said that this graded exersize has in many cases made things worse for people and has a very low success rate... I also read up on people experinces with it and it wasnt posative ....This scares me , Im now worried about doing it or what could happen !
So
I had a think and yes Im going to continue to go and try ..However I am going to listen to my body... I know when I need to stop and I know that through this process the intention is to over time push that time to longer and longer ... I will only do what I feel is safe and If I feel to pushed or that my body reacts I will stop.... After all this has worked for some but not for many , I willing to try anything but will look after myself first ...so watch this space
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