As you know im rather new to this ME/CFS stuff and im still learning still un diagnosed
Ive been in a bad patch for at least two weeks now and went to the doctors yesterday as this is the longest patch ive had of being so unwell with so many symptoms being so prominent.
She was great and explained that I am having a relapse
I didnt even know there was such a thing , I know I have patches of good and patches of bad , bad patches normally being a few days long followed by a day or even a few better days
I spent yesterday in bed just trying to rest, then this morning feeling slightly better but still very unwell I searched on the internet to find out more about relapse and found out that yes they do happen and are different to just a bad few days .
This somehow comforted me , I read tips and how others deal with relapse , it looks like above all I just have to rest up
I read a woman's story, what stood out for me was how she would have to talk to herself about how sleeping isnt giving in, its doing it to heal her body and mind.
Im a great one for saying things such as Im fighting the fight , I like to see myself as a fighter and will fight this with all that I have , I do not give in or give up....reading this story seemed to finally im print it in my mind that sleeping is fighting , Im not fighting this when I try to power through the symptoms or doing just one more household job when i know Ive hit my limit or seeing a friend when I should be resting ..thats all the wrong kind of fight , when I feel it coming if I just put myself to bed for a hour often I will wake up feeling a bit better and also I think by doing this I will save myself from having to spend days on end in bed because Ive pushed myself to far.
One other thing that got me thinking is the woman spoke about days with no symptoms, Again I wasn't really aware that this was possible , I know we are all different and some people are iller than others but I must say in the 18 months Ive been unwell I dont think ive had more than 1 or 2 days like that...Im not going to make it a goal to have days symptom free but I need to pay more attention to my symptoms and fight them in the best way I can.....Rest !
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